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Highlights from Dutch Lipedema Day Conference – Part 1

By Tatjana van der KrabbenOn May 30, 2015 I attended the 5th Dutch Lipedema Day in the lovely southern part of the Netherlands. It’s impossible to cover everything I heard and learned that day. In this...

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Highlights from Dutch Lipedema Day Conference – Part 2

By Tatjana van der KrabbenOn May 30, 2015 I attended the 5th Dutch Lipedema Day in the lovely southern part of the Netherlands. It’s impossible to cover everything I heard and learned that day. In this...

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The thing with lipedema diets

By Tatjana van der KrabbenRecently I read a blog by The Well-Rounded Mama with a very accessible overview of lipedema symptoms. Something in her introduction resounded with me:"However, when I have...

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The Summer My Elm Trees Died

by Maggie McCarey    In a few days, our summer’s end party will fill our garden and the street beyond with live music, dancing, and firelight. The friends of individual family members, forever friends...

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Low impact exercise – Aqua Lymphatic Therapy & Rebounding

By Tatjana van der KrabbenRecently an invitation landed in my inbox for a meeting called ‘Lipedema on the move’, specifically going into suitable exercise options with the opportunity to try these...

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Raising awareness for lipedema – a tale with trolls & fat bias

By Tatjana van der KrabbenOne time I was interviewed by a journalist of one the biggest women’s magazines in my country and had an awesome interview with her over the phone about my lipedema life....

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The Relationship between Cortisol and Estrogen - Part 3

Cortisol, Estrogen and Leptin: Is this the Party to Whom I am Speaking?By Maggie McCareyLife is a system engineered with such intelligence that humankind has barely grasped at the most elementary...

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Irene’s naked truth about lipedema

By Tatjana van der KrabbenRecently Irene Captijn started a website to raise awareness for lipedema. I’ve known Irene for some time and have worked with her on another lipedema awareness project: the...

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Sneaking a poorly known medical condition into fiction

By Tatjana van der KrabbenLipedema: a poorly understood yet common condition that causes the legs, hips, buttocks, and sometimes arms as well to swell with fat and fluid. Diet and exercise help manage...

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The relationship between cortisol and estrogen - Part 4

Corticotropin-releasing hormone (CRH), the “master stress hormone” and the Greek ChorusBy Maggie McCareyTHE GREEK CHORUS: Each of us has a Greek chorus inside our heads, every waking and sleeping...

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Losing circumference and weight with lipedema legs

By Tatjana van der KrabbenLosing weight from your legs and losing circumference on your legs. Despite having lipedema. Can it be done? Many say no. Some say yes. Now, what is it? It’s individual,...

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Celebrating 100,000 blog views

By Maggie McCarey, Stefanie Gwinn-Vega, Christina Williams Routon & Tatjana van der KrabbenWe’ve been posting on social media about a surprise, and to us it truly is. We certainly have been looking...

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The Theory of Opposing Processes in Illness and Healing

Maggie and Joe McCarey-KorkinThe Underlying Mechanism of Alternative HealingNon-traditional healing methodologies, referred to as alternative healing, are now grudgingly acknowledged as providing...

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Unsollicited lifestyle advice is harmful

By Tatjana van der KrabbenUnsollicited lifestyle advice – When you completely miss the fact that we were not sitting here idle, waiting for you to step forward with your insights.Many not only miss...

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I have a beach body, just like everybody else

By Tatjana van der KrabbenIn about a month me and my bits and bumps are hitting the beach again. In a tankini, without additional cover ups. That is neither good nor bad. Neither brave nor a display of...

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Starving yourself is not the answer

By Tatjana van der KrabbenStarving yourself, starvation, fasting: these words seem to pop up everywhere these days in relation to lipedema. And not just with respect to lipedema. There’s talk of...

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Dear doctor, can I make a wish?

By Tatjana van der KrabbenIt’s June. That means it’s Lipedema Awareness Month. For me that’s a time to see how far we’ve come and where we still need to get to. I’m greedy and needy, I know. I want...

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When the mental struggle with lipedema fails…

By Tatjana van der KrabbenYesterday the hairdresser came to my house. There was my mother and the kids, and we did our ‘Steel Magnolia’s’-thing in my kitchen. Over the years, like a broken record, I’ve...

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10 things I Iearned since my lipedema diagnosis

By Tatjana van der Krabben1.     Weight is not about calories in and calories outThis was a relief. Society may not get this, a lot of doctors may not get this yet, but I finally had it confirmed I...

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Shared decision making & patient empowerment

By Tatjana van der KrabbenNames and figures are lacking here and there, which I didn’t get around to copying that day. However, this doesn’t affect the thought behind this blog. Also, the opinions and...

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